Lifelong Heart Health: Improving Quality Care for Adult Congenital Heart Disease (ACHD) - 2025 Quality Summit Presentaiton (Non-CE)-Lifelong Heart Health: Improving Quality Care for Adult Congenital Heart Disease (ACHD)

Video Transcription

Video Summary

This session from the ACPC QNET steering committee highlights advancements and challenges in congenital heart disease (CHD) care across the lifespan, emphasizing quality improvement through data registries and multidisciplinary collaboration. Dr. Anitra Romf introduces panelists who discuss the growing population of adults living with CHD, the increasing complexity of their care, and the importance of adhering to guidelines. Brian Mosher presents a complex case of a 54-year-old with D-transposition of the great arteries who underwent a mustard procedure, illustrating the need for lifelong multidisciplinary management involving pediatric and adult specialists.<br /><br />Dr. Matthew Park reviews the ACPC QNET registry's evolution, now integrated with the National Cardiovascular Data Registry (NCDR), enhancing benchmarking, data quality, and metric development, including new metrics for pediatric exercise labs and adult congenital heart disease care. Dr. Ron Tunnell discusses the IMPACT Registry focusing on electrophysiology procedures in CHD patients, emphasizing improvements in data accuracy, procedural tracking, device data inclusion, and plans for version 3 implementation.<br /><br />Panelists stress the importance of patient perspectives, quality metrics development, and collaborations across centers to improve outcomes and resource utilization. Patients’ voices, like that of ACHD patient Mindy Byer, underscore the real-world impact of care improvements. The session concludes with a call to integrate patient-reported outcomes and neurodevelopmental follow-up as future quality metrics, fostering comprehensive, patient-centered CHD care.

Keywords

public reporting

cardiovascular healthcare

National Cardiovascular Data Registry

healthcare quality measurement

transparency

accountability

risk aversion

clinical registries

healthcare rankings

TAVR mandatory reporting

Congenital Heart Disease

ACPC QNET

Data Registries

Multidisciplinary Collaboration

Adult Congenital Heart Disease

Quality Improvement

Patient-Reported Outcomes

Neurodevelopmental Follow-Up