Mind the Gap: What is Congenital Heart Disease (CHD) to You, and What Should it Be? - 2025 Quality Summit Presentation (Non-CE)-Mind the Gap: What is Congenital Heart Disease (CHD) to You, and What Should it Be?

Video Transcription

Video Summary

This session on congenital heart disease (CHD) focused on bridging care gaps, particularly the transition between inpatient and outpatient care and implementing best practices through quality metrics. The session began with a polling question revealing most attendees sought to optimize CHD patient care. Dr. Deepka Thakkar presented a case of a 19-year-old male with repaired coarctation of the aorta and highlighted challenges in follow-up and inpatient-to-outpatient transitions, emphasizing the importance of clear communication, medication management, and lifelong surveillance to prevent complications.<br /><br />Dr. Martin Box discussed the IMPACT registry, a procedural-based database capturing outcomes within 72 hours post-intervention, and its role in tracking coarctation interventions. He highlighted the need to link this with QNET, which offers longitudinal ambulatory follow-up data, to comprehensively monitor CHD patients over time and improve care quality.<br /><br />Dr. Shubhi Srivastava reviewed the development and implementation of congenital heart quality metrics by the Adult Congenital and Pediatric Cardiology Quality Network (ACPC QNET). Using a rigorous Delphi process and pilot testing, metrics cover multiple domains such as imaging and exercise testing, supporting standardized care and continuous quality improvement. Sustaining these improvements demands ongoing measurement, collaboration, and addressing barriers in data sharing and institutional review processes.<br /><br />Overall, the session underscored the vital role of registries, standardized metrics, and coordinated communication in improving long-term outcomes for CHD patients.

Keywords

public reporting

cardiovascular healthcare

National Cardiovascular Data Registry

healthcare quality measurement

transparency

accountability

risk aversion

clinical registries

hospital rankings

transcatheter aortic valve replacement

congenital heart disease

care transition

quality metrics

IMPACT registry

QNET

coarctation of the aorta

adult congenital cardiology

pediatric cardiology

delphi process